The consistent collection and flow of high-quality health data can inform research and decision-making related to public health, improve delivery of healthcare services, and ultimately save lives. As COVID-19 highlighted, data are also crucial for the detection, prevention, and response to public health events.
Canada currently lacks a clear and consistent approach to health data management due to misaligned goals and priorities, various privacy concerns, and differing risk tolerances. The result is a siloed approach across jurisdictions, hospitals, and research and academic communities, with insufficient data to inform safety, quality, and equity improvements. The current approach also creates inefficiencies, stifles innovation, and hinders our ability to respond to emergencies large and small.
Public Health Agency of Canada
What are the socio-economic impacts of the current approach to health data sharing across Canada?